Source: United States House of Representatives – Representative Hank Johnson (GA-04)
WASHINGTON, D.C. – Congressman Hank Johnson (GA-04) today reintroduced a resolution to raise awareness for chordoma, a rare and aggressive form of bone cancer that affects the skull and spine. The resolution, introduced ahead of National Rare Disease Day on Feb. 27, highlights the urgent need for increased research, better treatments, and improved patient support.
Chordoma is a slow growing but complex cancer that affects more than 25,000 people worldwide. In the United States, approximately 300 individuals are diagnosed with chordoma each year. Due to its location near critical structures like the brain stem, spinal cord, and vital nerves, chordoma is among the most challenging tumors to treat. While surgery and radiation can sometimes be effective, recurrence rates remain high, and there are currently no drugs that can cure or effectively control the disease.
Congressman Johnson’s resolution underscores the need for:
- Accurate and early diagnosis of chordoma
- Development of new treatments, diagnostics, and potential cures
- Reducing barriers between research and the development of new treatments
- Patient-centered approaches to drug discovery and development
“I am proud to reintroduce this resolution to bring much-needed attention to chordoma and the challenges faced by these diagnoses with this rare disease,” said Congressman Johnson. “Patients and families deserve increased support, better treatment options, and greater investment in research to combat this devastating condition.”
Congressman Johnson has long been an advocate for raising awareness of chordoma. In 2022, he introduced a similar resolution after a former member of his staff, Joshua Smith, was diagnosed with the disease.
By reintroducing this resolution in the run up to National Rare Disease Day, Congressman Johnson reaffirms his commitment to supporting individuals and families affected by chordoma and other rare diseases.
About Congressman Hank Johnson:
Hank Johnson represents Georgia’s 4th Congressional District, where he is a staunch advocate for civil rights, public safety, and economic justice. Learn more at https://hankjohnson.house.gov/